News

More than a million Norwegians demand government action on clinical trial transparency

Today in Oslo a coalition of 20 patient groups and medical organisations is asking the Norwegian parliament to ensure that all clinical trials are registered and their results reported. These groups together represent the voices of over 1.2 million Norwegians.

The ExtraStiftelsen foundation today delivered the AllTrials campaign petition to Trond Giske, the head of the […]

18th October 2016|

European Medicines Agency in landmark freedom of information court battle

A major court battle over access to information about medicines is currently underway in Europe, with potentially far-reaching implications for researchers, doctors and patients worldwide. The case pits the European Medicines Agency (EMA), which wants to release information on a drug in response to a Freedom of Information request, against a pharmaceutical company seeking to […]

14th October 2016|

A roadmap to clinical trial transparency

The AllTrials campaign has created a roadmap to show people and groups what they can do to get all trials registered and results reported.

This is a constantly evolving document and we would appreciate any feedback at alltrials@senseaboutscience.org

 

View and download the roadmap.

View and download the Spanish translation.

7th October 2016|

International Academy of Nursing Editors (INANE): How we will support the AllTrials campaign

The guest blog below was written by medical professionals involved with INANE, whose membership recently unanimously agreed to support the AllTrials campaign.

 

The International Academy of Nursing Editors (INANE) is a loosely organized group of editors, publishers and reviewers that represent nursing journals from around the world. Yes, we know what our acronym means. And, as one […]

5th October 2016|

OpenTrials “search engine” for clinical trials nearing beta launch

The soon-to-be launched OpenTrials project aims to create an open, easy-to-use, linked database of information about the world’s clinical trials. It draws together information from multiple sources and presents the information in a variety of formats. The overall aim of the project is to improve access to information about trials, improve access to research, and […]

3rd October 2016|

Dear Priscilla and Mark, don’t waste your donation

Dear Priscilla and Mark

You are making a wonderful contribution in your pledge of $3 billion to medical research.

You probably already know that, right now, around $85 billion of medical research is being wasted every year in the US alone.

What you may not know is that you could do three simple things to make sure that […]

26th September 2016|

New US rules fail to impose full transparency on clinical trials

New rules released today by the Department of Health and Human Services (HHS) and the National Institutes of Health (NIH) will improve the availability of information about clinical trials posted on the ClinicalTrials.gov register, but still fall short of global best practices and lack teeth, a preliminary analysis by AllTrials suggests.

Dr Till Bruckner, campaign manager […]

16th September 2016|

UN calls for global action on clinical trial transparency

In a landmark report released today, the United Nations called on governments worldwide to pass legislation requiring clinical trials to be registered, and their methods and results to be fully reported. The report, authored by a high-level panel appointed by UN Secretary General Ban Ki-moon, explicitly calls for clinical trial study designs, protocols, data sets, […]

14th September 2016|

Do sex hormones skew outcomes in clinical trials?

An essay published in Cell Metabolism in early August flagged the scarcity of female participants in clinical trials involving both humans and animals, arguing that men and women are biologically not the same and may therefore react to many drugs in different ways.

Deborah J. Clegg, a Professor of Biomedical Science at Cedars-Sinai Hospital in California who […]

31st August 2016|

Registering research made easy: the Research Registry explained

Over the past two years, Christopher Limb has been involved in the development and management of the Research Registry, a global platform for research registration designed and run by clinicians to meet the needs of the research community. In this guest blog, he explains how the Research Registry works and why it supports the AllTrials […]

31st August 2016|