Latest Campaign Updates

Message from Ben Goldacre: Please help us make a real and lasting change

Dear Friends

Please help us make a real and lasting change.

Two years ago I started discussing the problem of withheld trial data with Sense About Science. Back then, the situation seemed hopeless, and I was angry: many institutions were in denial, and many past efforts to fix the problem had ground to a halt. In January 2013 […]

18th December 2014|

2014: The year of influence for AllTrials

By Professor Carl Heneghan, Director, Centre for Evidence-Based Medicine, Oxford, co-founding organisation of the AllTrials campaign

As 2014 comes to an end, I thought a recap of the achievements of the AllTrials campaign this year would be worthwhile. If you are still wondering what AllTrials is about, well, where have you been?

You may have missed the fact […]

17th December 2014|

The results of over a quarter of surgery clinical trials are still hidden

The results of 27% of clinical trials on surgical techniques remain hidden according to a new study in The BMJ. Researchers from the UK searched for trials registered on the clinical trial register in 2008 and 2009 with the keyword “surgery”. They found 395 relevant trials from 39 countries on 6 continents; 314 of […]

10th December 2014|
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    Australia’s National Health and Medical Research Council joins AllTrials

Australia’s National Health and Medical Research Council joins AllTrials

The National Health and Medical Research Council (NHMRC), the Australian Government’s medical research funder and regulator, has joined AllTrials. The NHMRC oversees medical research in Australia and established the Australian New Zealand Clinical Trials Register (ANZCRT). Around 100 clinical trials are registered each month on the ANZCTR with close to 10,000 registered by the […]

27th November 2014|

Patients’ and doctors’ campaign welcomes plans to tackle unjust and dangerous problem of hidden clinical trials

The AllTrials campaign, which has been calling for all clinical trials past and present to be registered, and full methods and results made available, today welcomed new proposals by the US Department of Health and Human Services (HHS) and National Institutes of Health (NIH) to expand reporting of clinical trial results, and to make that […]

20th November 2014|

EU Ombudsman asks medicines regulator why trial information is being kept hidden

The European Ombudsman, Emily O’Reilly, has asked the European Medicines Agency (EMA) why it agreed to keep large amounts of information hidden about clinical trials on the medicine Humira. AbbVie, the manufacturer of Humira, had sued the EMA to keep the information confidential. As part of a settlement announced in April, the EMA agreed to […]

12th November 2014|

Individual patient data showed chemotherapy leads to better brain tumour survival rates

A review of the individual patient data from 12 clinical trials showed that chemotherapy provided a small but significant increase in survival among people with the most common type of brain tumour.

Malignant gliomas are a deadly cancer of the brain and spine, most common in childhood and at age 50-60 years. Treatment generally involves […]

12th November 2014|

Using individual patient data to find the best surgery for hernias

Following an analysis of individual patient data (IPD), doctors were able to offer a less painful surgery to treat the most common type of hernia.

When people age, muscles become weaker and the intestines can sometimes push through weak spots causing a hernia. These can be painful and in some cases require surgery to treat. […]

11th November 2014|

A series on the value of individual patient data sharing

To lay bare the benefits and harms about medicines, researchers often need to get into the nitty-gritty details found in the data from the participants in clinical trials. Summary results often just don’t cut it. This week, AllTrials will be highlighting some of the research that demonstrates the benefits of these detailed analyses to […]

10th November 2014|

Strong transparency proposals from US clinical trial funder

Clinical trials funded by a large US funder will have to be registered before they begin and their results made available within one year of completion under its proposed policy. The Patient Centered Outcomes Research Institute (PCORI) is currently deciding how it will make the findings from research that it funds public. Since it […]

7th November 2014|