use MY data is a movement for patients who believe that researchers and analysts should have timely access to the patient data needed for their research, so that essential research continues and is not halted for lack of access to data.

With the privilege of access to patient data comes the responsibility for those using it, to register and publish their results. This responsibility is summarised by a use MY data patient advocate:

“I can understand the value of trials in developing new treatments and how important it is for ALL results to be made available both past and present since this will help to save more lives and ensure that information on all benefits of all drugs tested are available to clinicians and researchers involved in clinical trials.”