Muscular Dystrophy Campaign statement

The Muscular Dystrophy Campaign is pleased to support the AllTrials petition calling for all clinical trials to be registered and results to be published.

As a medical research charity, our supporters rightly have an expectation that the funds they raise will be used to move potential new treatments into clinical trials and the clinic as quickly and efficiently as possible. Encouraging groups performing clinical trials to publish the results could speed up this process and give our families faster access to potential new treatments.

We are aware that scientific journals focus on publishing positive results and companies may have various reasons for not publishing all clinical trial results. However, since a key part of clinical studies and trials is using previous results to improve study design, we believe all clinical trials – whether the results are positive or negative – should be treated with equal importance. The publication of all clinical trial results could improve trial design, avoid duplication and increase transparency.